Family Perception and Adaptation in Caring for Members with Schizophrenic Mental Disorders: An Ethnographic Study in Surabaya Rural Communities
DOI:
https://doi.org/10.55129/jnerscommunity.v15i2.3181Kata Kunci:
Schizophrenia;, Family Perception;, Adaptation;, Rural Community;, Ethnography;, Family ResilienceAbstrak
Schizophrenia is a severe mental disorder that creates a significant burden on families, especially in rural communities with limited access to services. Previous research has focused on family burdens and stigma, but few have explored in depth cultural perceptions and family adaptation strategies in rural Indonesia. This study aims to identify family perceptions of schizophrenia, explore the adapted strategies developed, and analyze the interaction between perception, stigma, and family dynamics in shaping treatment patterns in rural communities in Surabaya. The research uses an ethnographic qualitative design. Sampling was carried out purposively and snowball, involving 18 families as participants. Data were collected through in-depth interviews, participant observations, and document studies. Data analysis uses thematic analysis. The findings of the study revealed that family perceptions are dominated by cultural beliefs (guna-guna, santet) and religious beliefs (God's test). Social stigma drives social strategies of concealment and withdrawal. Behind these challenges, families demonstrate resilience through complex adaptation strategies, including emotional (acceptance), practical (role sharing, integrative treatment), and spiritual (worship, resignation) dimensions. The study concluded that families in rural communities develop unique and layered adaptation mechanisms, where culture acts as a source of resistance as well as a source of resilience. The implications of the findings emphasize the need to develop culturally sensitive and local strengths-based mental health interventions, as well as policies that support strengthening the role of families as primary caregivers.
Referensi
Al-Yateem, N., Rossiter, R. C., Al Tamimi, M., Ahmad, A., & Saifan, A. R. (2022). The role of religious support in coping with cancer: A descriptive phenomenological study. Journal of Religion and Health, 61(1), 123–145.
Badan, L., Galiana, L., Oliver, A., & De Simone, G. (2020). Family support and quality of life in patients with advanced cancer: A longitudinal study. Palliative & Supportive Care, 18 (3), 345–352.
Boston, P., Bruce, A., & Schreiber, R. (2011). Existential suffering in the palliative care setting: An integrated literature review. Journal of Pain and Symptom Management, 41 (3), 604–618.
Büssing, A., Recchia, D. R., Koenig, H., Baumann, K., & Frick, E. (2021). Factor structure of the Serenity Scale—A tool for spiritual care in patients with chronic diseases. Journal of Religion and Health, 60 (2), 1234–1255.
Calhoun, L. G., & Tedeschi, R. G. (2014). Handbook of posttraumatic growth: Research and practice. Routledge.
Creswell, J. W., & Poth, C. N. (2018). Qualitative inquiry and research design: Choosing among five approaches (4th ed.). Sage publications.
Frankl, V. E. (1984). Man's search for meaning: An introduction to logotherapy. Washington Square Press.
Jim, H. S., Pustejovsky, J. E., Park, C. L., Danhauer, S. C., Sherman, A. C., Fitchett, G., Merluzzi, T. V., Munoz, A. R., George, L., Snyder, M. A., & Salsman, J. M. (2015). Religion, spirituality, and physical health in cancer patients: A meta-analysis. Cancer, 121 (21), 3760–3768.
Johnston, B., Larkin, P., Connolly, M., Barry, C., Narayanasamy, M., Östlund, U., & McIlfatrick, S. (2021). The impact of person-centred care on patients' experiences of compassion and safety in specialist palliative care: A qualitative interview study. Cancer Nursing, 44(3), E245–E251.
Koenig, H. G. (2012). Religion, spirituality, and health: The research and clinical implications. ISRN Psychiatry, *2012*, 278730.
Lee, V. (2008). The existential plight of cancer: Meaning making as a concrete approach to the intangible search for meaning. Supportive Care in Cancer, 16(7), 779–785.
Li, Q., Loke, A. Y., & Hu, Y. (2021). The interplay between family support and depression in cancer patients: A longitudinal study. Psycho-Oncology, 30(5), 789–796.
Moustakas, C. (1994). Phenomenological research methods. Sage publications.
Park, C. L. (2017). Meaning making in the context of disasters. Journal of Clinical Psychology, *73*(12), 1704–1718.
Park, C. L., & Slattery, J. M. (2021). Resilience and growth in the face of chronic illness: The role of meaning and spirituality. Current Opinion in Psychology, 41, 1–5.
Puchalski, C. M., Vitillo, R., Hull, S. K., & Reller, N. (2014). Improving the spiritual dimension of whole person care: Reaching national and international consensus. Journal of Palliative Medicine, 17 (6), 642–656.
Rosyad, S., Kartawinata, A. M., & Firdaus, A. (2019). Nilai-nilai kearifan lokal masyarakat Sunda dalam menghadapi modernisasi. Jurnal Ilmu Sosial dan Ilmu Politik, 8(2), 123–135.
Rustandi, Y., & Hidayat, T. (2021). Religiosity and spiritual coping strategies in cancer patients: A study in West Java. Jurnal Keperawatan Indonesia, 24(1), 45–56. (7), 252–256.
Schermer-Sellers, T. (2021). The transformative power of receiving love: A qualitative study of relational healing. Journal of Humanistic Psychology, 61(4), 567–589.
Setyowati, et al. (2021). The unmet needs of palliative care for advanced cancer patients in Indonesia: A qualitative study of healthcare providers' perspectives. Asian Pacific Journal of Cancer Care, *6*(2), 215–221.
Shaw, A., Joseph, S., & Linley, P. A. (2021). Spiritual growth and end-of-life care: A systematic review. The American Journal of Hospice & Palliative Care, 38 (5), 456–462.
Sung, H., Ferlay, J., Siegel, R. L., Laversanne, M., Soerjomataram, I., Jemal, A., & Bray, F. (2021). Global cancer statistics 2020: GLOBOCAN estimates of incidence and mortality worldwide for 36 cancers in 185 countries. CA: A Cancer Journal for Clinicians, 71 (3), 209–249.
Vegh, D., Lunder, U., & Ohnsorg, K. (2022). Existential distress in patients with advanced cancer: A conceptual analysis for improved clinical practice. Palliative & Supportive Care, *20*(1), 112–119.
World Health Organization. (2020). Palliative care (Fact sheet).
WHO-IARC. (2022). Global Cancer Observatory: Indonesia Fact Sheet. International Agency for Research on Cancer.
